We also want to reach out to those who are isolated and those who are not connected to the internet. We would like to hear views from a wide cross-section of both health and social care professionals and the public. We'll be using a wide range of ways to engage with people, in particular digital media and film. Our project aims to capture, understand and explore what people think and feel when they hear the terms "palliative care" and "end of life care". One can only imagine the damage that was done because she did not understand what the term meant. She found out two weeks later that this meant he was dying. It can be summed up in the story we heard about a woman who was told that her husband was receiving "palliative care". Recent reports, such as More care, less pathway - which followed the review of the Liverpool care pathway - and the Keogh report, emphasise the urgent need for clear, compassionate communication, especially when people are being cared for in the last years, months and days of their lives. And if we can't find more acceptable words, we will disseminate our findings so that those working in health and social services are aware of the confusion, bafflement and misunderstanding that these terms can create for people. The evidence we collect will be used to consider whether there might be other, more readily understood terms or phrases that could be used instead of "palliative" and "end of life care".
We will be working in partnership with the National Council of Palliative Care who lead the Dying Matters Coalition. These responses will be fed into our new project on terms used by professionals.
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